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Journal of Intellectual Disabilities
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Quality of Life Measurement and its Use in the Field of Learning Disabilities

Shelley Lefort

Mary Fraser

Forth Valley Primary Care NHS Trust, Scotland, UK

Quality of life (QOL) is currently a popular and challenging concept within the field of learning disabilities. In this article the measurement of QOL and the challenges involved are examined through Raphael's debates. This includes detailed discussion on objective and subjective measures, value-based and value-free approaches, and traditional versus participatory approaches. The major issue of using self-reports or proxies to gather and measure QOL data is discussed. A short case study demonstrates the authors' experience of administering a particular QOL instrument. The article concludes with a brief review of the future of QOL, and emphasizes the belief that research and practice should involve all individuals concerned.

Key Words: learning disabilities • objective and subjective measures • quality of life • quality of life questionnaire

Journal of Intellectual Disabilities, Vol. 6, No. 3, 223-238 (2002)
DOI: 10.1177/1469004702006003033
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